Medical and social provision of cystic fibrosis patients

Abstract

The article represents a positive experience of the cooperation between the Russian Cystic Fibrosis Center, the Moscow Department of the Public Health and an Association of Cystic Fibrosis Childrens’ Parents. Such joint work made possible to develop individual treatment schemes and to organize timely outpatient observation of these patients, to provide a treatment continuity of cystic fibrosis patients between the Russian Cystic Fibrosis Center and paediatric outpatient departments as well as Adult Cystic Fibrosis Patients’ Center. It also permitted to arrange a distinct scheme for the full medicine provision and rehabilitation of cystic fibrosis patients and to improve their quality of life, to control precisely and to diminish financial expenses for cystic fibrosis patients’ treatment; to train doctors and nurses of Moscow outpatient departments in cystic fibrosis patients’ management and to improve a quality of outpatient medical care for cystic fibrosis patients.