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A role of Moscow regional register for management of cystic fibrosis patients

https://doi.org/10.18093/0869-0189-2013-0-2-27-32

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Abstract

Summary. This study was aimed at development of cystic fibrosis (CF) patient register for those living at Moscow and Moscow region. The CF patients living in Moscow region were found to have some clinical, genetic and bacteriological differences from CF patients living at the Western Europe. The median survival in 2003–2012 was 39.5 years. Aging of CF patients was associated to reduction in respiratory function, occurrence of more aggressive respiratory pathogens, increase in respiratory and gastrointestinal complication rate.

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Krasovsky S.A., Amelina E.L., Chernyak A.V., Kashirskaya N.Yu., Nikonova V.S., Voronkova A.Yu., Kondratyeva E.I., Samoilenko V.A., Sherman V.D., Kapranov N.I., Usacheva M.V., Naumenko Zh.K., Gorinova Yu.V., Chuchalin A.G. A role of Moscow regional register for management of cystic fibrosis patients. PULMONOLOGIYA. 2013;(2):27-32. (In Russ.) https://doi.org/10.18093/0869-0189-2013-0-2-27-32

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ISSN 0869-0189 (Print)
ISSN 2541-9617 (Online)