Adverse drug reactions during long-term use of two targeted drugs in pediatric patients with cystic fibrosis in the Russian Federation

A. Yu. Voronkova; E. K. Zhekaite; I. R. Fatkhullina; O. I. Golubtsova; E. A. Enina; I. P. Karimova; M. V. Erzutova; A. V. Orlov; M. G. Rybalkina; T. I. Safonova; D. F. Sergienko; I. P. Shulyak; E. I. Kondratyeva

PULMONOLOGIYA
Russian Pulmonology Journal

ISSN 0869-0189 (Print)
ISSN 2541-9617 (Online)

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Voronkova A.Yu., Zhekaite E.K., Fatkhullina I.R., Golubtsova O.I., Enina E.A., Karimova I.P., Erzutova M.V., Orlov A.V., Rybalkina M.G., Safonova T.I., Sergienko D.F., Shulyak I.P., Kondratyeva E.I. Adverse drug reactions during long-term use of two targeted drugs in pediatric patients with cystic fibrosis in the Russian Federation. PULMONOLOGIYA. 2025;35(2):202-212. (In Russ.) https://doi.org/10.18093/0869-0189-2025-35-2-202-212

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ISSN 0869-0189 (Print)
ISSN 2541-9617 (Online)

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About the Authors

A. Yu. Voronkova
Federal State Budgetary Scientific Institution “Research Centre for Medical Genetics”, Ministry of Science and Higher Education of the Russian Federation; State Budgetary Healthcare Institution of the Moscow region “Research Clinical Institute of Childhood”, Healthcare Ministry of Moscow Region
Russian Federation

Anna Yu. Voronkova, Candidate of Medicine, Leading Researcher, Pediatrician

Scientific and Clinical Department of Cystic Fibrosis; Department of Cystic Fibrosis

115522; ul. Moskvorechye 1; 115093; Serpukhovskaya 62; Moscow

tel.: (495) 324-20-24

Scopus Author ID: 57189352251; Web of Science Researcher ID: M-7191–2014

E. K. Zhekaite
Federal State Budgetary Scientific Institution “Research Centre for Medical Genetics”, Ministry of Science and Higher Education of the Russian Federation; State Budgetary Healthcare Institution of the Moscow region “Research Clinical Institute of Childhood”, Healthcare Ministry of Moscow Region
Russian Federation

Elena K. Zhekaite, Candidate of Medicine, Senior Researcher, Pediatrician

Department of Cystic Fibrosis

115522; ul. Moskvorechye 1; 115093; Serpukhovskaya 62; Moscow

tel.: (499) 324-15-01

Scopus ID: 57216849405; Web of Science Researcher ID: K-2207-2018

I. R. Fatkhullina
Federal State Budgetary Scientific Institution “Research Centre for Medical Genetics”, Ministry of Science and Higher Education of the Russian Federation; State Budgetary Healthcare Institution of the Moscow region “Research Clinical Institute of Childhood”, Healthcare Ministry of Moscow Region
Russian Federation

Irina R. Fatkhullina, Head of the Department, pediatrician, research fellow, Researcher

Cystic Fibrosis Department; Department of Hereditary and Metabolic Diseases; Scientific and Clinical Department of Cystic Fibrosis

115522; ul. Moskvorechye 1; 115093; Serpukhovskaya 62; Moscow

tel.: (495) 111-03-03

Author ID: 1124891

O. I. Golubtsova
Budgetary institution of the Chuvash Republic “Republican Children’s Clinical Hospital” of the Ministry of Health of the Chuvash Republic
Russian Federation

Olga I. Golubtsova, Candidate of Medicine, Head of the Department

Department of Pulmonology and Allergology

428020; ul. Fedora Gladkova 27; Cheboksary

tel: (8352) 55-01–26

Author ID: 657012

E. A. Enina
State Budgetary Healthcare Institution of the Stavropol Territory “Regional Children’s Clinical Hospital”; Federal State Budgetary Educational Institution of Higher Education “Stavropol State Medical University” of the Ministry of Health of the Russian Federation
Russian Federation

Elena A. Enina, Candidate of Medicine, Head of the Department, Associate Professor

Department of Pulmonology; Hospital Pediatrics Department

355029; ul. Semashko 3; 355017; ul. Mira 310; Stavropol

tel.: (8652) 35-73-38

Author ID: 1227060

I. P. Karimova
State Autonomous Institution of Healthcare “Chelyabinsk Regional Children’s Clinical Hospital” of the Ministry of Healthcare of the Chelyabinsk Region
Russian Federation

Irina P. Karimova, Candidate of Medicine, Head of the Department

Pulmonology Department

454087; ul. Blyukhera 42A; Chelyabinsk

tel.: (351) 232-80-80

Author ID: 981615

M. V. Erzutova
Federal State Budgetary Educational Institution of Higher Education “Privolzhsky Research Medical University”, Ministry of Healthcare of the Russian Federation
Russian Federation

Marina V. Erzutova, Candidate of Medicine, Researcher

Gastroenterology Department

603950; pl. Minina i Pozharskogo 10/1; Nizhniy Novgorod

tel.: (831) 422-20-00

Author ID: 562065

A. V. Orlov
ederal State Budgetary Educational Institution of Higher Education “North-Western State Medical University named after I.I.Mechnikov”, Ministry of Health of the Russian Federation; Saint Petersburg State Budgetary Healthcare Institution “Children’s City Hospital of St. Olga”
Russian Federation

Alexander V. Orlov, Candidate of Medicine, Infectious Disease Doctor, Pulmonologist, Associate Professor, Head of Department

Department of Pediatrics and Neonatology; Infectious Diseases (Boxed) Department No. 3

191015; ul. Kirochnaya 41; 194156; ul. Zemledel’cheskaya 2; Saint Petersburg

tel.: (812) 246-09-24

Author ID: 721638

M. G. Rybalkina
Federal State Budgetary Educational Institution of Higher Education “Orenburg State Medical University” of the Ministry of Healthcare of the Russian Federation
Russian Federation

Marina G. Rybalkina, Candidate of Medicine, Associate Professor

Department of Pediatrics

460000; ul. Sovetskaya 6; Orenburg

tel.: (3532) 50-06-06 (ext. 814)

Author ID: 582162

T. I. Safonova
Budgetary Healthcare Institution of the Omsk region “Regional Children’s Clinical Hospital”
Russian Federation

Tat’yana I. Safonova, Head of Department

Pulmonary Department

644001; ul. Kuibysheva 77; Omsk

tel.: (3812) 36-16-36

Author ID: 1274697

D. F. Sergienko
Federal State Budgetary Educational Institution of Higher Education “Astrakhan State Medical University”, Ministry of Healthcare of the Russian Federation
Russian Federation

Diana F. Sergienko, Doctor of Medicine, Professor, Professor of the Department

Department of Faculty Pediatrics

414000; ul. Bakinskaya 121; Astrakhan

tel.: (512) 52-41-43

Author ID: 433729

I. P. Shulyak
State Autonomous Healthcare Institution of the Sverdlovsk Region “Regional Children’s Clinical Hospital”
Russian Federation

Irina P. Shulyak, Pulmonologist

620149; ul. Serafimy Deryabinoy 34; Ekaterinburg

tel.: (343) 240-57-80

E. I. Kondratyeva
Federal State Budgetary Scientific Institution “Research Centre for Medical Genetics”, Ministry of Science and Higher Education of the Russian Federation; State Budgetary Healthcare Institution of the Moscow region “Research Clinical Institute of Childhood”, Healthcare Ministry of Moscow Region
Russian Federation

Elena I. Kondratyeva, Doctor of Medicine, Professor, Deputy Director of the Center, Head of the Department

Cystic Fibrosis Center; Scientific and Clinical Department of Cystic Fibrosis; Department of Genetics of Diseases of the Respiratory System

115522; ul. Moskvorechye 1; 115093; Serpukhovskaya 62; Moscow

tel.: (495) 324-20-24

Scopus ID: 35196167800; Web of Science Researcher ID: АВВ-9783–2021

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